egrp-cohortconsortium (Agenda)


Day 1, Monday November 16, 2020 (1:00 - 4:00 pm ET)


Opening Remarks and Introductions
Dr. Kathy Helzlsouer, National Cancer Institute, NIH
Dr. Lynne Wilkens, University of Hawaii Cancer Center

Welcome Remarks and Acknowledgments
Dr. Robert Croyle, Director, Division of Cancer Control and Population Sciences, National Cancer Institute, NIH
Dr. Stephen Chanock, Director, Division of Cancer Epidemiology and Genetics, National Cancer Institute, NIH

Acknowledging 20 years of Service and Leadership on the NCI Cohort Consortium
Robert N. Hoover, M.D., Sc.D., Scientist Emeritus, Division of Cancer Epidemiology and Genetics, 
National Cancer Institute, NIH

Deborah M. Winn, Ph.D., Senior Advisor to the Director of the Division of Cancer Prevention, National Cancer Institute, NIH

SESSION I COVID-19 Research in Cohort Studies
1:20-2:10 Moderators:
Dr. Katie O’Brien, National Institute of Environmental Health Sciences, NIH
Dr. Shine Chang, University of Texas MD Anderson Cancer Center
1:20-1:50 The International 100K+ Cohorts Consortium (IHCC): Integrating Large-Scale Cohorts to Address Global Scientific Challenges
Dr. Geoffrey Ginsburg, Duke University School of Medicine
1:50-2:10 Q & A Session
2:10-2:20 Stretch Break
SESSION II Lightning Talks
2:20-3:00 Project Groups or meeting attendees interested in a 5 minute pitch for a new project idea or to share interesting results, followed by 1-2 clarifying questions.


Ms. Camille Pottinger, The Scientific Consulting Group, Inc.
Dr. Heather Eliassen, Harvard Medical School and Harvard T.H. Chan School of Public Health
SESSION III Cohort Consortium Project Group Updates
3:00-4:00 Moderators:
Dr. Hazel Nichols, University of North Carolina Gillings School of Global Public Health
Dr. Holly Harris, Fred Hutchinson Cancer Research Center


Associate Member Council Update
Dr. Holly Harris, Fred Hutchinson Cancer Research Center


Updates on the Biliary Tract Cancers Pooling Project
Dr. Jill Koshiol, National Cancer Institute, NIH


Liver Cancer Pooling Project
Dr. Peter Campbell, American Cancer Society


Ovarian Cancer Cohort Consortium: New Initiatives and Future Directions
Dr. Renée Fortner, German Cancer Research Center
Dr. Britton Trabert, National Cancer Institute, NIH
4:00 Adjourn


Day 2, Tuesday November 17, 2020 (8:00 – 11:00 am ET)

Session IV Participant Engagement
Dr. Minouk Schoemaker, The Institute of Cancer Research, London
Dr. Erika Rees-Punia, American Cancer Society
8:00-8:20 The All of Us Research Program: Engagement Strategies and Lessons Learned
Mr. Justin Hentges, All of Us Research Program, National Institutes of Health (NIH)
8:20-8:30 Positive Partnerships: Engaging Black Women in Health Research
Dr. Kimberly Bertrand, Boston University School of Medicine and Slone Epidemiology Center
8:30-8:40 Breast Cancer and the Environment Research Program (BCERP): Community Engagement and Participant Retention
Dr. Susan Pinney, University of Cincinnati College of Medicine
8:40-9:00 Q & A session (questions via chat only)
9:00-9:05 Stretch Break
Session V Data Sharing in Cohort Studies
Dr. Lynne Wilkens, University of Hawaii Cancer Center
Dr. Samuel Antwi, Mayo Clinic
9:05-9:20 Biologic Specimen and Data Repository Information Coordinating Center (BioLINCC)
Mr. Sean Coady, National Heart, Lung, and Blood Institute, NIH
9:20-9:35 Order Online for Data Sharing: Menus, Self-Service, and Automated Delivery in the California Teachers Study
Dr. James Lacey and Ms. Emma Spielfogel, City of Hope
9:35-9:45 Q & A session (questions via chat only)
9:45-10:30 European General Data Protection Regulation (GDPR) Updates

Dr. Marc Gunter, International Agency for Research Cancer (IARC)
Dr. Joanne Elena, National Cancer Institute, NIH
9:45-10:00 Update on Navigating the General Data Protection Regulation
Mr. Robert Eiss, National Institutes of Health (NIH)
10:00-10:15 Possible Data Transfer Solutions and Where We Go from Here
Dr. Giske Ursin, Cancer Registry of Norway
10:15-10:30 Q & A session (questions from chat only)
Session VI Cohort Consortium Project Group Updates
Dr. Jeannette Schenk, Fred Hutchinson Cancer Research Center
Dr. Nonye Harvey, National Cancer Institute, NIH

Lung Cancer Cohort Consortium
Dr. Hilary Robbins, International Agency for Research on Cancer (IARC)

HPV Cancer Cohort Consortium
Dr. Paul Brennan, International Agency for Research on Cancer (IARC)

11:00 Adjourn