Childhood Cancer Data Initiative Annual Symposium (Abstract Registration): Submission #42

serial: '42'
sid: '148403'
uuid: 8f154ea8-f3f6-4434-ab4f-6f40e95b6ce7
uri: /nci/ccdisymposium/abstract
created: '1754592826'
completed: '1754595475'
changed: '1754595475'
in_draft: '0'
current_page: ''
remote_addr: 10.208.28.64
uid: '0'
langcode: en
webform_id: ccdi_symposium_abstract
entity_type: node
entity_id: '2139'
locked: '0'
sticky: '0'
notes: ''
metatag: meta
data:
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      add_author_first_name: Subhashini
      add_author_last_name: Jagu
      add_author_middle: ''
      add_author_organization: 'National Cancer Institute'
    - add_author_degree: Ph.D.
      add_author_first_name: Holly
      add_author_last_name: Beale
      add_author_middle: C
      add_author_organization: 'University of California, Santa Cruz'
    - add_author_degree: B.S.
      add_author_first_name: Ellen
      add_author_last_name: Kephart
      add_author_middle: T
      add_author_organization: 'University of California, Santa Cruz'
    - add_author_degree: Ph.D.
      add_author_first_name: Olena
      add_author_last_name: Vaske
      add_author_middle: M
      add_author_organization: 'University of California, Santa Cruz'
    - add_author_degree: Ph.D.
      add_author_first_name: Melissa
      add_author_last_name: Cline
      add_author_middle: S
      add_author_organization: 'University of California, Santa Cruz'
    - add_author_degree: Ph.D.
      add_author_first_name: Jingchun
      add_author_last_name: Zhu
      add_author_middle: ''
      add_author_organization: 'University of California, Santa Cruz'
    - add_author_degree: ''
      add_author_first_name: Mary
      add_author_last_name: Goldman
      add_author_middle: J
      add_author_organization: 'University of California, Santa Cruz'
    - add_author_degree: ''
      add_author_first_name: Brian
      add_author_last_name: Craft
      add_author_middle: ''
      add_author_organization: 'University of California, Santa Cruz'
    - add_author_degree: Ph.D.
      add_author_first_name: Allison
      add_author_last_name: Heath
      add_author_middle: P
      add_author_organization: "Children's Hospital of Philadelphia"
    - add_author_degree: M.S.
      add_author_first_name: Hannah
      add_author_last_name: Calkins
      add_author_middle: R
      add_author_organization: "Children's Hospital of Philadelphia"
    - add_author_degree: B.S.
      add_author_first_name: William
      add_author_last_name: Khan
      add_author_middle: 'N'
      add_author_organization: "Children's Hospital of Philadelphia"
    - add_author_degree: M.S.
      add_author_first_name: Xu
      add_author_last_name: Zhu
      add_author_middle: ''
      add_author_organization: "Children's Hospital of Philadelphia"
    - add_author_degree: M.A.
      add_author_first_name: Christopher
      add_author_last_name: Nemarich
      add_author_middle: M
      add_author_organization: "Children's Hospital of Philadelphia"
    - add_author_degree: Ph.D.
      add_author_first_name: Jinghui
      add_author_last_name: Zhang
      add_author_middle: ''
      add_author_organization: "St. Jude Children's Research Hospital"
    - add_author_degree: M.S.
      add_author_first_name: Michael
      add_author_last_name: Rusch
      add_author_middle: ''
      add_author_organization: "St. Jude Children's Research Hospital"
    - add_author_degree: M.S.
      add_author_first_name: Clay
      add_author_last_name: McLeod
      add_author_middle: ''
      add_author_organization: "St. Jude Children's Research Hospital"
    - add_author_degree: M.S.
      add_author_first_name: Stephanie
      add_author_last_name: Sandor
      add_author_middle: ''
      add_author_organization: "St. Jude Children's Research Hospital"
    - add_author_degree: M.S.
      add_author_first_name: Jobin
      add_author_last_name: Sunny
      add_author_middle: Jacob
      add_author_organization: "St. Jude Children's Research Hospital"
    - add_author_degree: M.S.
      add_author_first_name: Delaram
      add_author_last_name: Rahbarinia
      add_author_middle: ''
      add_author_organization: "St. Jude Children's Research Hospital"
    - add_author_degree: M.S.
      add_author_first_name: Kevin
      add_author_last_name: Benton
      add_author_middle: ''
      add_author_organization: "St. Jude Children's Research Hospital"
    - add_author_degree: B.A.
      add_author_first_name: Jake
      add_author_last_name: Noble
      add_author_middle: ''
      add_author_organization: "St. Jude Children's Research Hospital"
    - add_author_degree: 'M.D., Ph.D.'
      add_author_first_name: Samuel
      add_author_last_name: Volchenboum
      add_author_middle: L
      add_author_organization: 'University of Chicago, Department of Pediatrics'
    - add_author_degree: M.S.
      add_author_first_name: Luca
      add_author_last_name: Graglia
      add_author_middle: ''
      add_author_organization: 'University of Chicago, Department of Pediatrics'
    - add_author_degree: Ph.D.
      add_author_first_name: Michael
      add_author_last_name: Watkins
      add_author_middle: T
      add_author_organization: 'University of Chicago, Department of Pediatrics'
    - add_author_degree: M.S.
      add_author_first_name: Brian
      add_author_last_name: Furner
      add_author_middle: T
      add_author_organization: 'University of Chicago, Department of Pediatrics'
    - add_author_degree: MBA
      add_author_first_name: Lydia
      add_author_last_name: Rogers
      add_author_middle: ''
      add_author_organization: 'Frederick National Laboratory for Cancer Research'
    - add_author_degree: Ph.D.
      add_author_first_name: Natalia
      add_author_last_name: Asafieva
      add_author_middle: ''
      add_author_organization: 'Frederick National Laboratory for Cancer Research'
    - add_author_degree: Ph.D.
      add_author_first_name: Patrick
      add_author_last_name: Dunn
      add_author_middle: ''
      add_author_organization: 'Frederick National Laboratory for Cancer Research'
    - add_author_degree: M.A.
      add_author_first_name: Mark
      add_author_last_name: Cunningham
      add_author_middle: ''
      add_author_organization: 'Frederick National Laboratory for Cancer Research'
    - add_author_degree: M.S.
      add_author_first_name: Janisha
      add_author_last_name: Patel
      add_author_middle: ''
      add_author_organization: 'Frederick National Laboratory for Cancer Research'
  abstract: 'While advances have been made in pediatric cancer treatments, an ongoing challenge is improving outcomes for patients with rare cancer subtypes as well as patients with refractory or recurrent disease.  A continuing barrier is the siloing of data across institutions, preventing researchers from assembling the large cohorts necessary to study cancer mechanisms and develop novel therapies.  To address this issue, the NCI’s Childhood Cancer Data Initiative (CCDI) developed the CCDI Federation API in 2022, creating a platform that aggregates and integrates clinical and research data from multiple pediatric cancer institutions.  Developed in collaboration with Children’s Hospital of Philadelphia, Pediatric Cancer Data Commons, St. Jude Children’s Research Hospital, and Treehouse Childhood Cancer Initiative, the Federation API was designed to be easily integrated into other NCI resources and includes detailed implementation guides for new participating institutions.  The Federation API empowers users to discover, access, and visualize data on hundreds of thousands of samples from thousands of patients, accelerating novel scientific discoveries and enhancing data access for researchers, clinicians, patients, and families.'
  abstract_title_: 'Childhood Cancer Data Initiative Federation API: Integrating Data Across Pediatric Cancer Institutions'
  email_address_: aglyle@ucsc.edu
  institution_: 'University of California, Santa Cruz'
  presenting_author_: 'A. Geoffrey Lyle'