Childhood Cancer Data Initiative Annual Symposium (Abstract Registration): Submission #31

serial: '31'
sid: '146499'
uuid: f11e7370-b2f1-4559-85fb-6a9d6deba99d
uri: /nci/ccdisymposium/abstract
created: '1752141258'
completed: '1752141258'
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langcode: en
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data:
  authors_:
    - add_author_degree: ''
      add_author_first_name: Korede
      add_author_last_name: Akindele
      add_author_middle: ''
      add_author_organization: 'The Dorcas Cancer Foundation'
  abstract: |-
    Background
    Data integration remains a critical challenge in pediatric cancer care in Nigeria, where
    fragmented information systems and limited collaboration hinder effective policymaking
    and resource allocation. The WHO St. Jude NCCP ICAYA initiative highlighted the need for
    coordinated data systems to support better outcomes for children, adolescents, and young
    adults (CAYA) with cancer.

    Aim
    This study explores lessons from the NCCP ICAYA program and its influence on Nigeria’s
    efforts to establish a comprehensive pediatric cancer registry, with a focus on ongoing
    work in Nigeria

    Methods
    We conducted a qualitative review of sessions and stakeholder engagements from the
    NCCP ICAYA program, focusing on themes of data integration, institutional collaboration,
    and applicability to national registry development.

    Results
    The NCCP ICAYA initiative significantly deepened awareness of the importance of a unified
    pediatric cancer registry. It underscored the value of cross-sector collaboration and real-
    time data sharing across healthcare institutions. These insights have informed the ongoing
    development of a national, population-based pediatric cancer registry capturing incidence,
    treatment, and outcomes. Collaboration among the Federal Ministry of Health, Lagos
    University Teaching Hospital, and NGOs such as The Dorcas Cancer Foundation has been
    notably strengthened through the initiative.

    Conclusion
    The NCCP ICAYA program has played a pivotal role in advancing data integration and
    stakeholder collaboration in Nigeria’s pediatric oncology landscape. Lessons from the
    initiative have shaped the foundation for the Pediatric Cancer Registry and offer a scalable
    model for national implementation to improve childhood cancer care outcomes in Nigeria.
  abstract_file: '82517'
  abstract_title_: 'The Need for Data Integration and Collaboration for Improved Pediatric Cancer Registry: Lessons Learned from the National Cancer Control Programme Integrating Children, Adolescents, and Young Adults (NCCP ICAYA)'
  email_address_: korede@tdcf.ng
  institution_: 'The Dorcas Cancer Foundation'
  presenting_author_: 'Korede Akindele'