Childhood Cancer Data Initiative Annual Symposium (Abstract Registration): Submission #31

Abstract Submission for Poster Presentation
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Abstract Title:: The Need for Data Integration and Collaboration for Improved Pediatric Cancer Registry: Lessons Learned from the National Cancer Control Programme Integrating Children, Adolescents, and Young Adults (NCCP ICAYA)
Abstract::
Background
Data integration remains a critical challenge in pediatric cancer care in Nigeria, where
fragmented information systems and limited collaboration hinder effective policymaking
and resource allocation. The WHO St. Jude NCCP ICAYA initiative highlighted the need for
coordinated data systems to support better outcomes for children, adolescents, and young
adults (CAYA) with cancer.

Aim
This study explores lessons from the NCCP ICAYA program and its influence on Nigeria’s
efforts to establish a comprehensive pediatric cancer registry, with a focus on ongoing
work in Nigeria

Methods
We conducted a qualitative review of sessions and stakeholder engagements from the
NCCP ICAYA program, focusing on themes of data integration, institutional collaboration,
and applicability to national registry development.

Results
The NCCP ICAYA initiative significantly deepened awareness of the importance of a unified
pediatric cancer registry. It underscored the value of cross-sector collaboration and real-
time data sharing across healthcare institutions. These insights have informed the ongoing
development of a national, population-based pediatric cancer registry capturing incidence,
treatment, and outcomes. Collaboration among the Federal Ministry of Health, Lagos
University Teaching Hospital, and NGOs such as The Dorcas Cancer Foundation has been
notably strengthened through the initiative.

Conclusion
The NCCP ICAYA program has played a pivotal role in advancing data integration and
stakeholder collaboration in Nigeria’s pediatric oncology landscape. Lessons from the
initiative have shaped the foundation for the Pediatric Cancer Registry and offer a scalable
model for national implementation to improve childhood cancer care outcomes in Nigeria.

Abstract:: https://events.cancer.gov/system/files/webform/ccdi_symposium_abstract/146499/CCDI%20Symposium%20Abstract%20Submission%20Korede%20Akindele.pdf
Authors::
1. First Name: Korede
   Last Name: Akindele
   Organization: The Dorcas Cancer Foundation

Presenting Author:: Korede Akindele
Institution:: The Dorcas Cancer Foundation
Email Address:: korede@tdcf.ng