Annual Meeting of the NCI Cohort Consortium (Abstract Submission): Submission #15

Submission information
Submission Number: 15
Submission ID: 127591
Submission UUID: c2a84d9a-f9b7-4e90-9340-be136acb8947

Created: Fri, 09/13/2024 - 19:13
Completed: Fri, 09/13/2024 - 19:35
Changed: Mon, 09/16/2024 - 16:42

Remote IP address: 10.208.28.69
Submitted by: Anonymous
Language: English

Is draft: No
Lightning Talks Abstract
Jung Hye
Kwon
Professor
MD, PhD
Chungnam National University College of Medicine/Chungnam National University Sejong Hospital
Quality of life follow-up cohort of patients with incurable cancer and their caregivers attending regional cancer centers - study protocol/HA23C042723C042
  1. First Name: Jung Hun
    Last Name: Kang
    Organization: Division of Hematology/Oncology Department of Internal Medicine School of Medicine, Gyeongsang National University
  2. First Name: Kyu-Hyoung
    Last Name: Lim
    Organization: Department of Internal Medicine, Kangwon National University Hospital
  3. First Name: Jung Sik
    Last Name: Huh
    Organization: Ulsan University Hospital, University of Ulsan College of Medicine, Ulsan, Republic of Korea 4. Department of Urology, School of Medicine
  4. First Name: Eun-Kee
    Last Name: Song
    Organization: Division of Hematology/Oncology, Chonbuk National University Medical School
  5. First Name: Young-Jin
    Last Name: Choi
    Organization: Department of Internal Medicine, Pusan National University Hospital
  6. First Name: Ye-Seul
    Last Name: Kim
    Organization: Department of Family Medicine, Chungbuk National University Hospital
  7. First Name: Byung Ho
    Last Name: Choi
    Organization: Ulsan University Hospital, University of Ulsan College of Medicine
  8. First Name: Hyun Woo
    Last Name: Lee
    Organization: Department of Hematology-Oncology, Ajou University School of Medicine
  9. First Name: Hwan Jung
    Last Name: Yun
    Organization: Department of Internal Medicine, Chungnam National University Hospital
  10. First Name: Su-Jin
    Last Name: Koh
    Organization: Ulsan University Hospital, University of Ulsan College of Medicine, Ulsan, Republic of Korea
  11. First Name: Sun Jin
    Last Name: Sym
    Organization: Division of Hematology and Oncology, Department of Internal Medicine, Gachon University Gil Hospital
  12. First Name: Se-il
    Last Name: Go
    Organization: Department of Internal Medicine, Gyeongsang National University Changwon Hospital, Gyeongsang National University College of Medicine
Introduction: Cancer patients experience physical, mental, and social pain, impacting both the patient and their family. Increasing cancer incidence and advances in treatment both increase the number of cancer survivors in Korea. Because patients flock to Seoul and the metropolitan areas, continuous care and comprehensive life support are lacking. Traveling long distances for treatment causes logistical and quality-of-life challenges for patients traveling for care. Method: This prospective cohort study targets incurable cancer patients (n=720) and their families (n=288) from ten regional cancer centers and two affiliated hospitals in Korea. Sub-cohorts are based on treatment refusal, Neurologic complications, catheter-related symptoms, and skeletal-related events. Medical records and patient-reported outcomes will be collected every three months up to three years following, with surveys for guardians conducted for a year post-patient demise. Discussion: Cancer's dynamic nature significantly affects both patients and their caregivers. Identifying factors impacting their quality of life is crucial for integrating them healthily into society. The establishment of a regional cancer center consortium, guided by the findings of this study, aims to address and improve the unmet needs of local cancer patients and their families, enhancing overall quality of life and contributing to the well-being of our local community. Trial registration: KCT0009177 (registered at https://cris.nih.go.kr/ on 2024/02/16)
This study was supported by the National R&D Program for Cancer Control through the National Cancer Center (NCC) funded by the Ministry of Health & Welfare, Republic of Korea (RS-2023-CC138341).
Key Words: Cancer, regional cancer center, catheter, SRE, Quality of life