Annual Meeting of the NCI Cohort Consortium (Abstract Submission): Submission #15

Submission information
Submission Number: 15
Submission ID: 127591
Submission UUID: c2a84d9a-f9b7-4e90-9340-be136acb8947

Created: Fri, 09/13/2024 - 19:13
Completed: Fri, 09/13/2024 - 19:35
Changed: Mon, 09/16/2024 - 16:42

Remote IP address: 10.208.28.69
Submitted by: Anonymous
Language: English

Is draft: No
serial: '15'
sid: '127591'
uuid: c2a84d9a-f9b7-4e90-9340-be136acb8947
uri: /egrp/cohortconsortium/abstracts
created: '1726269221'
completed: '1726270529'
changed: '1726519334'
in_draft: '0'
current_page: ''
remote_addr: 10.208.28.69
uid: '0'
langcode: en
webform_id: cohort_2024_abstracts_submission
entity_type: node
entity_id: '1467'
locked: '0'
sticky: '0'
notes: ''
data:
  additional_authors:
    - add_author_degree: ''
      add_author_first_name: 'Jung Hun '
      add_author_last_name: Kang
      add_author_middle: ''
      add_author_organization: 'Division of Hematology/Oncology Department of Internal Medicine School of Medicine,  Gyeongsang National University'
    - add_author_degree: ''
      add_author_first_name: ' Kyu-Hyoung'
      add_author_last_name: Lim
      add_author_middle: ''
      add_author_organization: ' Department of Internal Medicine, Kangwon National University Hospital'
    - add_author_degree: ''
      add_author_first_name: 'Jung Sik'
      add_author_last_name: Huh
      add_author_middle: ''
      add_author_organization: 'Ulsan University Hospital, University of Ulsan College of Medicine, Ulsan, Republic of Korea  4. Department of Urology, School of Medicine'
    - add_author_degree: ''
      add_author_first_name: Eun-Kee
      add_author_last_name: Song
      add_author_middle: ''
      add_author_organization: 'Division of Hematology/Oncology, Chonbuk National University Medical School'
    - add_author_degree: ''
      add_author_first_name: 'Young-Jin '
      add_author_last_name: Choi
      add_author_middle: ''
      add_author_organization: 'Department of Internal Medicine, Pusan National University Hospital'
    - add_author_degree: ''
      add_author_first_name: Ye-Seul
      add_author_last_name: Kim
      add_author_middle: ''
      add_author_organization: 'Department of Family Medicine, Chungbuk National University Hospital'
    - add_author_degree: ''
      add_author_first_name: 'Byung Ho'
      add_author_last_name: Choi
      add_author_middle: ''
      add_author_organization: 'Ulsan University Hospital, University of Ulsan College of Medicine'
    - add_author_degree: ''
      add_author_first_name: 'Hyun Woo'
      add_author_last_name: Lee
      add_author_middle: ''
      add_author_organization: 'Department of Hematology-Oncology, Ajou University School of Medicine'
    - add_author_degree: ''
      add_author_first_name: 'Hwan Jung '
      add_author_last_name: Yun
      add_author_middle: ''
      add_author_organization: 'Department of Internal Medicine, Chungnam National University Hospital'
    - add_author_degree: ''
      add_author_first_name: Su-Jin
      add_author_last_name: Koh
      add_author_middle: ''
      add_author_organization: 'Ulsan University Hospital, University of Ulsan College of Medicine, Ulsan, Republic of Korea'
    - add_author_degree: ''
      add_author_first_name: ' Sun Jin  '
      add_author_last_name: Sym
      add_author_middle: ''
      add_author_organization: 'Division of Hematology and Oncology, Department of Internal Medicine, Gachon  University Gil Hospital'
    - add_author_degree: ''
      add_author_first_name: ' Se-il '
      add_author_last_name: Go
      add_author_middle: ''
      add_author_organization: 'Department of Internal Medicine, Gyeongsang National University Changwon Hospital,  Gyeongsang National University College of Medicine'
  degree_s_: 'MD, PhD'
  email: kwonjhye.onco@gmail.com
  first_name: 'Jung Hye'
  last_name: Kwon
  organization: 'Chungnam National University College of Medicine/Chungnam National University Sejong Hospital'
  poster_title: 'Quality of life follow-up cohort of patients with  incurable cancer and their caregivers attending  regional cancer centers - study  protocol/HA23C042723C042'
  short_biography_: |-
    Introduction: Cancer patients experience physical, mental, and social pain, impacting both the patient and their family. Increasing cancer incidence and advances in treatment both increase the number of cancer survivors in Korea. Because patients flock to Seoul and the metropolitan areas, continuous care and comprehensive life support are lacking. Traveling long distances for treatment causes logistical and quality-of-life challenges for patients traveling for care. Method: This prospective cohort study targets incurable cancer patients (n=720) and their families (n=288) from ten regional cancer centers and two affiliated hospitals in Korea. Sub-cohorts are based on treatment refusal, Neurologic complications,  catheter-related symptoms, and skeletal-related events. Medical records and patient-reported outcomes will be collected every three months up to three years following, with surveys for guardians conducted for a year post-patient demise. Discussion: Cancer's dynamic nature significantly affects both patients and their caregivers. Identifying factors impacting their quality of life is crucial for integrating them healthily into society. The establishment of a regional cancer center consortium, guided by the findings of this study, aims to address and improve the unmet needs of local cancer patients and their families,  enhancing overall quality of life and contributing to the well-being of our local community. Trial registration: KCT0009177 (registered at https://cris.nih.go.kr/ on 2024/02/16) 
     This study was supported by the National R&D Program for Cancer Control through the National Cancer  Center (NCC) funded by the Ministry of Health & Welfare, Republic of Korea (RS-2023-CC138341).
     Key Words: Cancer, regional cancer center, catheter, SRE, Quality of life
  title: Professor