Annual Meeting of the NCI Cohort Consortium (Abstract Submission): Submission #8

serial: '8'
sid: '150019'
uuid: 4fdc7561-b4ba-471f-8a45-e0a4e1775718
uri: /egrp/cohortconsortium/abstracts
created: '1756318539'
completed: '1756319627'
changed: '1756319627'
in_draft: '0'
current_page: ''
remote_addr: 10.208.24.239
uid: '0'
langcode: en
webform_id: cohort_2024_abstracts_submission
entity_type: node
entity_id: '1467'
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sticky: '0'
notes: ''
metatag: meta
data:
  additional_authors:
    - add_author_degree: 'Ph.D., MPH'
      add_author_first_name: Isaac
      add_author_last_name: Ergas
      add_author_middle: J.
      add_author_organization: 'Kaiser Permanente Northern California Division of Research'
    - add_author_degree: 'MSW, MPH'
      add_author_first_name: Janise
      add_author_last_name: Roh
      add_author_middle: M.
      add_author_organization: 'Kaiser Permanente Northern California Division of Research'
    - add_author_degree: MPH
      add_author_first_name: Lia
      add_author_last_name: "D'Addario"
      add_author_middle: D.
      add_author_organization: 'Kaiser Permanente Northern California Division of Research'
    - add_author_degree: MS
      add_author_first_name: Alexa
      add_author_last_name: Zimbalist
      add_author_middle: ''
      add_author_organization: 'Kaiser Permanente Northern California Division of Research'
    - add_author_degree: MS
      add_author_first_name: Cecile
      add_author_last_name: Laurent
      add_author_middle: ''
      add_author_organization: 'Kaiser Permanente Northern California Division of Research'
    - add_author_degree: 'MS, MPH'
      add_author_first_name: Jia
      add_author_last_name: Li
      add_author_middle: ''
      add_author_organization: 'Kaiser Permanente Northern California Division of Research'
    - add_author_degree: MPH
      add_author_first_name: Clara
      add_author_last_name: Yang
      add_author_middle: ''
      add_author_organization: 'Kaiser Permanente Northern California Division of Research'
    - add_author_degree: 'MA, MS'
      add_author_first_name: Kelly
      add_author_last_name: Radimer
      add_author_middle: ''
      add_author_organization: 'Kaiser Permanente Northern California Division of Research'
    - add_author_degree: BS
      add_author_first_name: Sri
      add_author_last_name: Chimmula
      add_author_middle: ''
      add_author_organization: 'Kaiser Permanente Northern California Division of Research'
    - add_author_degree: BT
      add_author_first_name: Kanchana
      add_author_last_name: Chandrasekaran
      add_author_middle: ''
      add_author_organization: 'Kaiser Permanente Northern California Division of Research'
    - add_author_degree: MS
      add_author_first_name: Deepmala
      add_author_last_name: Budhija
      add_author_middle: ''
      add_author_organization: 'Kaiser Permanente Northern California Division of Research'
    - add_author_degree: MFA
      add_author_first_name: Adam
      add_author_last_name: Boroian
      add_author_middle: ''
      add_author_organization: 'Kaiser Permanente Northern California Division of Research'
    - add_author_degree: Ph.D.
      add_author_first_name: Rochelle
      add_author_last_name: 'Payne Ondracek'
      add_author_middle: ''
      add_author_organization: 'Roswell Park Comprehensive Cancer Center'
    - add_author_degree: Ph.D.
      add_author_first_name: Marilyn
      add_author_last_name: Kwan
      add_author_middle: L.
      add_author_organization: 'Kaiser Permanente Northern California Division of Research'
    - add_author_degree: Ph.D.
      add_author_first_name: Christine
      add_author_last_name: Ambrosone
      add_author_middle: ''
      add_author_organization: 'Roswell Park Comprehensive Cancer Center'
    - add_author_degree: Sc.D.
      add_author_first_name: Lawrence
      add_author_last_name: Kushi
      add_author_middle: H.
      add_author_organization: 'Kaiser Permanente Northern California Division of Research'
  degree_s_: 'PhD, MPH'
  email: Isaac.J.Ergas@kp.org
  first_name: Isaac
  last_name: Ergas
  organization: 'Kaiser Permanente Northern California Division of Research'
  poster_title: 'The Pathways Study data portal: an automated, web-based platform for data sharing in a large cohort of breast cancer survivors'
  short_biography_: |-
    Background:  The recent NIH Data Management & Sharing (DMS) policy outlines appropriate sharing of NIH-supported data. The Pathways Study, a prospective cohort of 4,504 breast cancer survivors diagnosed at Kaiser Permanente Northern California from 2005–2013, is developing an online data portal to make study-data and resources accessible while safeguarding privacy.
    Methods: The portal includes: (1) study overviews and research team profiles; (2) collaborators, ancillary studies, publications, and dissemination of findings such as news stories and webinars; (3) downloadable questionnaires, data dictionaries, and biospecimen information; (4) interactive visualizations; (5) data explorer and request system; and (6) guidelines for data use, IRB requirements, and quality control prior to manuscript submission. 
    Data availability will be built-out incrementally, beginning with frequently requested data domains (e.g., demographics, tumor characteristics, outcomes) and later to additional domains. Data will be curated and uploaded into an SQL Server, then transferred daily into Oracle APEX to support the portal’s query and download functions. Future users can search variables, generate custom variable lists, and submit formal requests, which will integrate into internal workflows for review, approval, and delivery.
    Results: The general website launched in October 2024, providing study information, dissemination of findings, and administrative resources. The data portal, including the variable explorer and data request system, is anticipated to launch in October 2025.
    Conclusion/Discussion: We anticipate that the Pathways Study data portal will streamline data-sharing, facilitate collaboration, and maximize the value of cohort data. This platform also offers a model to meet the expectations of the NIH DMS policy.
  title: 'Staff Scientist'