Agenda
| Friday, September 18, 2026 | |
| 8:00 a.m. – 8:45 a.m. | Registration & Networking |
| 8:45 a.m. – 8:50 a.m. | Welcome, Introduce NCI Director Speaker: Jack Shern, M.D. |
| 8:50 a.m. – 9:00 a.m. | Remarks from NCI Director Speaker: Anthony Letai, M.D. |
| 9:00 a.m. – 9:15 a.m. | CCDI: From Data to Discovery — Shaping the Future Evolving the CCD Learning Ecosystem Speaker: Warren Kibbe, Ph.D. |
| 9:15 a.m. – 10:30 a.m. | Data Generated: Standing on the Shoulders of Giants Building the National Strategy |
| Molecular Profiling of High-Risk Solid Malignancies Identifies Targeted Therapy Options Speaker: Katie Janeway, M.D. | |
| Molecular Characterization Initiative (MCI) Platform for Advancing Precision Diagnosis and Discovery in Pediatric CNS Tumors Speaker: Diana Thomas, M.D., Ph.D. and Sarah Leary, M.D., M.S. | |
| Germline Cancer Predisposition in the MCI: Opportunities for Assessing Outcomes and Promoting Cascade Testing Speaker: Phil Lupo, Ph.D., MPH | |
| Sarcoma, the Imaging Data Commons and Research Characterization Speaker: Jack Shern, M.D. | |
| 10:30 a.m. – 10:45 a.m. | Break |
| 10:45 a.m. – 12:00 p.m. | CCDI Data Ecosystem in Action; From Data to Discovery Lightning Talks |
| Use of Bulk FHIR EHR Data for Extracting and Abstracting Research-Relevant Content Speaker: Hannah Calkins, MSIS | |
| From WSI to Methylation-Defined CNS Tumor Classes in the CCDI-MCI Speaker: Rakesh Khanna | |
| Multicenter Histology Image Integration For Machine Learning-enabled Pediatric Sarcoma Classification Speaker: Jill Rubinstein, M.D., Ph.D. | |
| GAIPO: Graph Artificial Intelligence for Pediatric Oncology Speaker: Jing Su, Ph.D. | |
| Leveraging AI to Characterize Acute Leukemia Speaker: Shibiao Wan, Ph.D. | |
| Building Real-World Data Sets with the ExtractEHR+ Toolkit Speaker: Richard Aplenc, M.D., Ph.D., MSCE, and Tamara Miller M.D., MSCE | |
| 12:00 p.m. – 12:35 p.m. | Advocate and Family Perspectives Speakers: Ann Ramer, Scott Lenfestey; Ailani Myers; Stephanie McMahon |
| 12:35 p.m. – 2:00 p.m. | Lunch, Poster Session, and CCDI Resource Fair |
| 2:00 p.m. – 3:15 p.m. | Towards the Integrated Learning Health System |
| Survivorship and Patient-Mediated Data Sharing Speaker: Brian Furner, M.S. | |
| RADIANT, PCX, and MCI: Piloting Tools, Workflows, and Collaborative Frameworks for Scaled National Infrastructure on Behalf of Clinical Research Speaker: Adam Resnick, Ph.D. | |
| RADIANCE (Rapid AI for Data Integration and Analytics in Childhood and Young Adult Cancer Ecosystems) Speaker: Heidi Hanson, Ph.D. | |
| The Role of Cancer Registries in the Learning Health Systems -- Perspectives from the NCCR Speaker: Betsy Hsu, Ph.D., MPH | |
| Childhood Cancer Data Initiative Federation API: Facilitate Data Discovery Across Resources Speaker: Subhashini Jagu, Ph.D. | |
| 3:15 p.m. – 3:30 p.m. | Break |
| 3:30 p.m. – 4:30 p.m. | Fireside Chats – Looking Ahead |
| Fireside Chat 1: Accelerating Therapeutic Development in Pediatric Oncology Participants: Stacey Adam, Ph.D.; Diana Bradford, M.D.; Rosandra Kaplan, M.D., Jack Shern, M.D. | |
| Fireside Chat 2: AI Applications in the Clinic Participants: Frank Alexander, Ph.D.; Julian Hong, M.D.; Warren Kibbe, Ph.D.; Elaine Mardis, M.D. | |
| 4:30 p.m. – 5:00 p.m. | Engaging with CCDI, NIH, and Next Steps |
| Pediatric and AYA Challenges and Highlighted Topics Jaime Guidry Auvil, Ph.D. | |
| NIH Biogenesis Mission and HHS APG Goals Speaker: Warren Kibbe, Ph.D. | |
| 5:00 p.m. | Adjourn |