Childhood Cancer Data Initiative Annual Symposium (Agenda)

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Agenda

 

September 17, 2026 – Evening Welcome Event
3:30 p.m. – 4:00 p.m.Registration & Gathering
4:00 p.m. – 5:30 p.m.Welcome & Opening Remarks from Anthony Letai, M.D., NCI Director
Poster Session
6:00 p.m. – 7:00 p.m.Informal Gathering

 

 

Friday, September 18, 2026
8:00 a.m. – 8:45 a.m.Registration & Gathering
8:45 a.m. – 9:00 a.m.Welcome
Warren Kibbe, Ph.D., and Jack Shern, M.D.
9:00 a.m. – 9:45 a.m.Fireside Chat – CCDI Vision: Evolving the CCDI Vision- Perspectives from the Community
9:45 a.m. – 11:30 a.m.

Informational Panel - Building the Foundations: CCDI Accomplishments and Progress Towards the Integrated Learning Health System

  • Molecular Characterization Initiative
  • Building and Populating the Data Ecosystem (Subhashini)
  • Integrating and Enhancing the Ecosystem: Lessons Learned, Successes, Framework for Next Steps
  • Real-world Data and EHR Extraction
  • Incorporating Tools, Federation
  • Data Submission Processes and Workflows
  • Lightning talks – Lessons from Using the Data
  • Challenges, Highlighted Topics
  • Q&A Session
12 Noon – 1:30 p.m.Lunch, Poster Session, and CCDI Resources Fair
1:30 p.m. – 1:45 p.m.Keynote Speaker: Perspectives from a Patient Advocate
1:45 p.m. – 2:15 p.m.Results of the Virtual Sessions – Key Considerations
2:15 p.m. – 3:30 p.m.

Break-out sessions - Moving Forward as a Community

  • Sustainable Infrastructure
  • Accelerating Pediatric Cancer Translation Using AI
3:30 p.m. – 3:45 p.m.Break
3:45 p.m. – 4:15 p.m.Report-outs from Break-out Sessions
4:15 p.m. – 4:30 p.m.Conclusion and Closing
4:30 p.m.Adjourn