Cancer Research Data Exchange Summit (Agenda)

Welcome and Opening Remarks (Plenary)

• Jennifer Goldsack, CEO, Digital Medicine Society (DiMe)
• Avinash Shanbhag, Executive Director, Office of Technology, ONC

Keynote Speakers (Plenary)

• Micky Tripathi, PhD, MPP, National Coordinator for Health Information Technology, ONC

Session 1 (Plenary): Stories from the Field: technical foundational support for standardized health data exchange via open, consensus-based standards

• Stephen Konya (Moderator)
  • Group 1 - Federal
    • Liz Turi, ONC
    • Anne-Marie Meyer, NCI
    • William Gordon, CMMI, EOM
  • Group 2 - Industry and CC-DIRECT
    • Su Chen, MD, CodeX
    • Amy Cramer, Vulcan
    • Warren Kibbe, Duke
  • Wrap-up
    • Umit Topaloglu, NCI

Session 2 (Plenary): Introduction to the use cases and user perspectives

• Liz Turi, ONC

Lunch

Session 3 (Breakout): Questions in the facilitation guide

Break and move back to TE406/ 408/ 410

Keynote Speaker (Plenary)

• Kimryn Rathmell, PhD, Director, National Cancer Institute

Session 4 (Plenary): User Perspective Report outs

Welcome and Opening Remarks (Plenary)

Keynote Speaker (Plenary)

• Dr. Danielle Carnival Chairwoman, Deputy Assistant to the President for the Cancer Moonshot
• Ms. Amanda Borens, patient advocate, cancer survivor, and data scientist

Break and move into Use Case Breakout Groups

Session 5 (Plenary in breakout rooms): Introduction to the Use Cases

• Clinical Trials Matching (TE 406)
• Immune-related Adverse Events (2W 908)
• Cancer Registries (TE 110)

Session 6 (Breakout): CURRENT & FUTURE STATE AND INTRO TO ELEMENTS

Lunch & Transition to TE 406 for Session 7

Session 7 (Plenary): Use Case Report outs. (CURRENT & FUTURE)

Break - Transition to break-out rooms

Session 8 (Breakout by Use Cases): DATA ELEMENTS PT 2, ACTIONS, TIMELINES

Break - Transition to TE 406/408/410 for Session 9

Session 9 (Plenary): Report Outs (TIMELINES/ACTIONS)

Session 10 (Plenary): USCDI+ Cancer Next Steps