Cancer Research Data Exchange Summit (Agenda)

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Agenda

Cancer Research Data Exchange Summit

DATE: May 8 - 9, 2024

Click here to download a copy of the agenda.

Event Recordings

Post-Event Recordings
USCDI+ Cancer Post-Summit Summary WebinarView Slides | For a recording of the webinar, please contact USCDI.Plus@hhs.gov.
USCDI+ Cancer Registry Data ElementsView Slides | For a recording of the webinar, please contact USCDI.Plus@hhs.gov.
UUSCDI + Cancer Clinical Trials Matching and immune-related Adverse Events Data ElementsView Slides | For a recording of the webinar, please contact USCDI.Plus@hhs.gov.
Day One, Wednesday, May 8th

Welcome and Opening Remarks (Plenary)

  • Jennifer Goldsack, CEO, Digital Medicine Society (DiMe)
  • Avinash Shanbhag, Executive Director, Office of Technology, ONC
For copies of the slides and webinar recordings, please contact USCDI.Plus@hhs.gov.

Keynote Speakers (Plenary)

  • Micky Tripathi, PhD, MPP, National Coordinator for Health Information Technology, ONC
For copies of the slides and webinar recordings, please contact USCDI.Plus@hhs.gov.

Session 1 (Plenary): Stories from the Field: technical foundational support for standardized health data exchange via open, consensus-based standards

  • Stephen Konya (Moderator)
    • Group 1 - Federal
      • Liz Turi, ONC
      • Anne-Marie Meyer, NCI
      • William Gordon, CMMI, EOM
    • Group 2 - Industry and CC-DIRECT
      • Su Chen, MD, CodeX
      • Amy Cramer, Vulcan
      • Warren Kibbe, Duke
    • Wrap-up
      • Umit Topaloglu, NCI
For copies of the slides and webinar recordings, please contact USCDI.Plus@hhs.gov.

Session 2 (Plenary): Introduction to the use cases and user perspectives

  • Liz Turi, ONC
For copies of the slides and webinar recordings, please contact USCDI.Plus@hhs.gov.
Lunch 
Session 3 (Breakout): Questions in the facilitation guide 
Break and move back to TE406/ 408/ 410 

Keynote Speaker (Plenary)

  • Kimryn Rathmell, PhD, Director, National Cancer Institute
For copies of the slides and webinar recordings, please contact USCDI.Plus@hhs.gov.
Session 4 (Plenary): User Perspective Report outsFor copies of the slides and webinar recordings, please contact USCDI.Plus@hhs.gov.
Day Two, Thursday, May 9th
Welcome and Opening Remarks (Plenary)For copies of the slides and webinar recordings, please contact USCDI.Plus@hhs.gov.

Keynote Speaker (Plenary)

  • Dr. Danielle Carnival Chairwoman, Deputy Assistant to the President for the Cancer Moonshot
  • Ms. Amanda Borens, patient advocate, cancer survivor, and data scientist
For copies of the slides and webinar recordings, please contact USCDI.Plus@hhs.gov.
Break and move into Use Case Breakout Groups 

Session 5 (Plenary in breakout rooms): Introduction to the Use Cases

  • Clinical Trials Matching (TE 406)
  • Immune-related Adverse Events (2W 908)
  • Cancer Registries (TE 110)
For copies of the slides and webinar recordings, please contact USCDI.Plus@hhs.gov.
Session 6 (Breakout): CURRENT & FUTURE STATE AND INTRO TO ELEMENTS 
Lunch & Transition to TE 406 for Session 7 
Session 7 (Plenary): Use Case Report outs. (CURRENT & FUTURE)For copies of the slides and webinar recordings, please contact USCDI.Plus@hhs.gov.
Break - Transition to break-out rooms 
Session 8 (Breakout by Use Cases): DATA ELEMENTS PT 2, ACTIONS, TIMELINES 
Break - Transition to TE 406/408/410 for Session 9 
Session 9 (Plenary): Report Outs (TIMELINES/ACTIONS)For copies of the slides and webinar recordings, please contact USCDI.Plus@hhs.gov.
Session 10 (Plenary): USCDI+ Cancer Next StepsFor copies of the slides and webinar recordings, please contact USCDI.Plus@hhs.gov.