Cancer Research Data Exchange Summit (Overview)


The Office of the National Coordinator for Health Information Technology (ONC), the National Institutes of Health’s (NIH) National Cancer Institute (NCI), the Centers for Disease Control and Prevention, the Centers for Medicare & Medicaid Services, and the Food and Drug Administration are hosting a two-day data exchange summit to further explore United States Core Data Set for Interoperability (USCDI)+ Cancer use cases in a coordinated effort to advance and mature the exchange of standardized cancer data.

The participant group will comprise researchers, clinicians, informatics/data scientists, patient advocates, standard-setting organizations (such as HL7/FHIR), policymakers, EHR vendors, and industry partners. Their collaborative efforts will focus on identifying current opportunities, challenges, and essential oncology-specific data requirements for the USCDI+ Cancer use cases (1) using real-world data to determine patient eligibility for clinical trials; (2) identifying immune-related adverse events; (3) enhancing the efficiency and timeliness of cancer registry data.