Inherited Cancer Syndrome Collaborative Annual Investigator Meeting (Agenda) | Events Registration

Agenda

National Cancer Institute
9609 Medical Center Drive
Rockville, MD 20850
Room TE406 (East Tower, Lower Level)

Meeting Goals:

Share project results, identify challenges, and share lessons learned.
Discuss gaps and future directions.
Establish new projects to build on evidence generated.

Download the final agenda here.

The following times are listed in the Eastern Time Zone.

Time	Topic and Speakers
8:00 - 8:30 a.m.	In-person Registration and Virtual Log on
8:30 - 8:40 a.m.	Welcome, ICSC Updates, and Looking Ahead Nonniekaye Shelburne
8:40 - 10:20 a.m.	Newly Funded Projects and Study Results 8:40 a.m. Personalizing Genetic Test Results Management and Outcomes after Diagnosis of Cancer: the Georgia-California SEER Genelink Study Allison Kurian and Steven Katz R01CA283207 9:00 a.m. IMPULSS Economic Toolkit Alanna Rahm R01CA211723 9:20 a.m. Comparing Uptake of Cancer Genetic Services via Chatbot versus Standard of Care: The BRIDGE Trial Kim Kaphingst U01CA232826 9:40 a.m. Gender and Sex Diversity in Research: Participant Perspectives Harris Bland U01CA232829 10:00 a.m. Expanding Genetic Risk Assessment to Underserved Populations: A Cancer Registry-Based Approach Tuya Pal U01CA254832
10:20 - 10:40 a.m.	Break
10:40 - 12:15 p.m.	Addressing Inequities and Inequalities in Genetics Care 10:40 a.m. Health IT Tool Implementation in Community Hospitals Sidd Pratap and Clasherrol Edwards U01CA232829 10:50 a.m. Electronic Decision Aids for pre-test Genetic Counseling Daniel Chung U01CA243695 11:00 a.m. Barriers to Genetic Testing in the ENGAGE Study Angela Bradbury U 01CA243702 11:10 a.m. Social Media Based Recruitment for the Latino Population Jackie Shannon U01CA232819 11:20 a.m. Group Discussion Moderators: Elena Stoffel and Jennifer Griggs What populations have been reached with successful approaches? What gaps remain around race, geography, sex/gender, etc? What are study successes in explaining genetic studies to non-English speakers? How are studies overcoming budgetary constraints related to materials and resources for non-English materials and resources?
12:15 - 1:45 p.m.	Lunch and Optional Small Group Sessions 12:45 - 1:40 p.m. Optional Breakout/Consult Sessions with NCI Program Staff (In-person and Virtual) Program / Study Coordinators Moderator: Rachel Monahan Room: TE420 (Lower Level) ICSC WG Collaborations Moderators: WG Leads Room: 2E908 (2nd Floor) NCI Program Director Q&A (In-person Only) Nonniekaye Shelburne Room: TE406 (Lower Level)
1:45 - 2:45 p.m.	Approaches and Response to Electronic Health Record Genomic Integration Lessons Learned Kate Nathanson U01CA232836 Group Discussion Moderator: Lori Orlando What is and is not working? What adaptations have been implemented in both risk identification and GC/GT? What responses to integration have studies received? Is there an opportunity for an ICSC paper on EHR genomic integration?
2:45 - 3:10 p.m.	Fostering Future ICSC Collaborations Addressing Genetic Counseling Uptake and Adherence in At-risk Individuals Georgia Wiesner
3:10 - 3:30 p.m.	Break
3:30 - 4:30 p.m.	Working Group Updates 3:30 p.m. Communications Kim Kaphingst 3:50 p.m. Automation of Pre-Test Interventions Debi Cragun 4:10 p.m. CBO and Advocacy Best Practices Alejandra Hurtado de Mendoza
4:30 - 5:30 p.m.	Measurement Approaches to Genetic Counseling and Testing Uptake Lessons Learned Meghan Underhill-Blazey R01CA263532 Group Discussion Moderator: Suzanne MacFarland What is working, what is not, and adaptations implemented? How are studies measuring the uptake of different implementation approaches? How can we classify approaches across studies and describe uptake? Is there an opportunity for an ICSC paper on uptake measurement?
5:30 p.m.	Adjourn