Agenda
All times are noted in Eastern Daylight Time.
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The meeting theme: "Training New Patient Advocate Stars”
The meeting room: Seminar TE 406/408/410 |
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| 8:00 a.m. | Registration | |
| 9:00 a.m. | Overview of meeting logistics Elena Schwartz, CCCT, NCI Jen Berghers, EMMES |
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| 9:05 a.m. | Welcoming Remarks Wolf Lindwasser, CCCT, NCI Malcolm Smith, CTEP, NCI |
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| 9:20 a.m. | PASC Co-Chairs Remarks Patty Spears, PASC Co-Chair Josh Mailman, PASC Co-Chair |
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| 9:25 a.m. | PA Odyssey Session description: Patient Advocate Odyssey as SC/TF Member Moderator: Patty Spears, PASC Co-Chair Panelists: Dana Deighton (GISC EG TF); Leila Hamroun (CPSC); Lisa Hayes (BCSC); Anne Meyn (BCSC BOLD TF) |
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| 9:45 a.m. | Keynote Presentation "Immunotherapy for Cancer: The When and the Why" Dr. Stephanie Goff, Center for Cancer Research, NCI Moderator: Elena Schwartz, CCCT, NCI |
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| 10:15 a.m. | Break Communication with the NCI PDs and MOs |
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| 10:35 a.m. | NCI’s Office of Advocacy Relations: Overview and Update John Freimuth, OAR, NCI Moderator: Ramy Serour, CCCT, NCI |
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| 11:00 a.m. | Break Mock concept evaluation preparation |
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| 11:05 a.m. | Mock concept evaluation Moderator: Patty Spears, PASC Co-Chair Participants: Tricia Hernandez (LYSC); Dee Sparacio (GCSC Ovarian TF) NCI Staff |
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| 12:30 p.m. | Lunch (on your own) | |
| 1:00 - 1:40 p.m. | Optional: lunchtime tour of the Cancer Genomics Research Laboratory and a meeting and short lab tour with scientists form the Laboratory of Translational Genomics, Division of Cancer Epidemiology and Genetics, NCI, NIH | |
| 2:00 p.m. | Recap of the mock concept evaluation Moderators: Josh Mailman, PASC Co-Chair and Elena Schwartz, CCCT, NCI Panelists: Crystal Reinhart (LKSC) ; Tricia Hernandez (LYSC); Dee Sparacio (GCSC Ovarian TF); Newly elected patient advocates |
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| 2:20 p.m. | PASC working group updates: PA Evaluation questions guide [Patty Spears, PASC Co-Chair] PASC Co-Chair Handbook [Josh Mailman, PASC Co-Chair] |
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| 2:45 p.m. | Mentoring program Moderators: Josh Mailman, PASC Co-Chair and Elena Schwartz, CCCT, NCI Panelists: Jim Williams (GUSC Prostate TF); Thelma Brown (BCSC BIO TF); Marty Chakoian (GUSC Prostate TF) |
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| 3:15 p.m. | Break Communication with the NCI PDs and MOs |
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| 3:35 p.m. | Q&A about PA role in Clinical Trial Planning Meetings Moderator: Josh Mailman, PASC Co-Chair Panelists: Kenneth Brothers (GUSC); Jane Perlmutter (CISC); Laurel Pracht (CCDRSC) |
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| 4:00 p.m. | Live Feedback Live feedback about the PASC in-person meeting and other PASC-related activities Moderators: Patty Spears and Josh Mailman, PASC Co-Chairs |
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| 4:30 p.m. | Closing Remarks Elena Schwartz, CCCT, NCI Patty Spears, PASC Co-Chair Josh Mailman, PASC Co-Chair |
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| 4:40 p.m. | Adjournment | |