CCDI Webinar Series (Registration)

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Registration

OMB No.: 0925-0740
Expiration Date: 11/30/2028

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Additional Registration Questions

Please select the virtual webinars you would like to attend.  If you would like to be automatically registered for the entire series, including future forums not currently listed, select the "Register for all current and future webinars in the series" checkbox.

Title: Measuring Quality and Experience of Advanced Childhood Cancer Care
Brief Description of Event: Join CCDI for an exciting talk with Dr. Prasanna Ananth from the Yale School of Medicine on how patient-report outcomes (PROs) data can drive change across child, adolescent, and young adult cancer care. During this webinar, she will discuss the rationale for amplifying patient and caregiver voices in an effort to improve cancer care; spotlight novel, patient-centered approaches to measuring quality and experience of care for children with advanced cancer; and explore how health systems can turn PRO data into actionable insights that improve care and overall outcomes.

Title: Kids Aren’t Small Adults: Building Intentional AI for Pediatric Brain Tumors

Brief Description of Event:
AI and computational imaging can inform better, more personalized treatments for kids with brain cancer. During this webinar, Dr. Pallavi Tiwari from the University of Wisconsin-Madison will explore how MRI images can offer extra clues about a child’s diagnosis and prognosis, discuss what it would take to build reliable and high-quality MRI data sets for children with brain cancer, and expand on how the first unified, community-driven pediatric brain tumor image informatics (PBTi2) toolkit aims to improve scan organization, facilitate more in-depth annotations, and help researchers better understand how pediatric brain tumors behave.

Title: CCDI Virtual Symposium Series

Brief Description of Event:

Presentation: History of CCDI: From the Ad Hoc Working Group to 2026
Speaker: Warren Kibbe, Ph.D., FACMI (NCI) and Jack Shern, M.D. (NCI)

Presentation: Molecular Characterization Initiative: Identification and Implementation of a Standardized Genomic Characterization of Childhood Cancers
Speaker: Jack Shern (NCI), Erin Rudzinski, M.D. (Indiana University), and Malcolm Smith, M.D., Ph.D. (NCI) 

Presentation: Molecular Characterization Initiative: The Genomic Landscape of Pediatric Brain Tumors and Implications for Future Research
Speaker: Diana Thomas, M.D., Ph.D. (Nationwide Children’s Hospital) and Sarah Leary, M.D., M.S. (Seattle Children's Hospital)

Title: CCDI Virtual Symposium Series

Brief Description of Event:

Presentation: Application of DNA Methylation Analysis to the Classification of Rhabdomyosarcoma
Speaker: Frederic G. Barr, M.D., Ph.D. (NCI)

Presentation: Findings From the FusOnC2 Consortium: Focus on Rhabdomyosarcoma 
Speaker: Corinne Linardic, M.D., Ph.D. (Duke University)

Presentation: Opportunities to Expand Patient/Family Engagement in the Genomic Characterization of Pediatric Malignancies
Speaker: Ann Ramer, M.P.H. (Ohio Department of Health)

Title: CCDI Virtual Symposium Series

Brief Description of Event:

Presentation: National Childhood Cancer Registry: Research Implications as a Source of Real-world Evidence (RWE) and Potential Role of Registries in Pediatric Cancer Research
Speaker: Donna Rivera, Pharm.D., M.Sc., FISPE (Canal Row Advisors) and Johanna Goderre, M.P.H. (NCI)

Title: CCDI Virtual Symposium Series

Brief Description of Event:

Presentation: Strategies for Follow Up and Potential Interventions for Patients with Pathological or Likely Pathological Germline Variants
Speaker: Philip Lupo, Ph.D., M.P.H. (Emory University School of Medicine)

Presentation: Genomic and Epigenomic Characterization of Childhood Cancer: Clinical Trials and New Drug Discovery and Development – Academic and Industry Perspectives
Speaker: Brenda Weigel, M.Sc., M.D. (St. Jude Children's Research Hospital) and Michael Cox, Pharm.D., M.H.Sc., BCOP

Presentation: Abstract Awards Ceremony and Lightening Oral Presentations
Speakers: Award winners

Title: CCDI Virtual Symposium Series

Brief Description of Event:

Presentation: Admixture Analysis of Acute Lymphoblastic Leukemia in African-American Children: the ADMIRAL Study
Speaker: Logan Spector, Ph.D. (University of Minnesota)

Presentation: Illuminating Dark Antigens for Childhood Cancer Immunotherapy
Speaker: Yi Xing, Ph.D. (Children’s Hospital of Philadelphia)

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