CCDI Rare Tumor Workshop - Overview


CCDI Workshop: Advancing a National Initiative for Rare Cancers in Children, Adolescents, and Young Adults

This workshop is open to the public and free to attend, but registration is required to receive access to the event link.

Date: Friday, November 18, 2022: 10am - 3:30pm ET

Location: Virtual meeting

NCI is convening a variety of leaders with a breadth of scientific and technical expertise to gain common understanding of the current issues and opportunities in advancing the development of rare tumor therapies and exploring programs to replicate across multiple diseases among children and adolescent adults.

Workshop Purpose:

There is an unmet need for a coordinated national effort to study and collect data on very rare childhood cancers with the goal to accelerate progress in understanding the natural history and improving treatments for these cancers. CCDI is looking to initiate and coordinate this as a highly collaborative effort. In order to successfully establish such an effort, there is the need for input and buy-in from the broader childhood cancer community. The purpose of this workshop is to describe why this effort is needed, how CCDI can help create an infrastructure to successfully accelerate progress in very rare pediatric and young adult cancers, and to seek broad input, participation, and collaboration from the childhood cancer community.

Meeting Organizers:

  • Brigitte Widemann, MD, Chief, NCI Pediatric Oncology Branch
  • Greg Reaman, MD, Scientific Director, NCI Childhood Cancer Data Initiative

If you have any questions, please contact