Global Cancer Stigma Research Workshop (Agenda)


DAY 1: September 28, 2022 (11:00am-4:00pm)

Welcome & Workshop Objectives
Dr. Katie Heley, DCCPS/NCI


Opening Remarks
Dr. Satish Gopal, Director, NCI Center for Global Health


Session 1: Impact of Cancer Stigma
Moderator: Dr. Vidya Vedham; NCI

  1. Dr. Laura Nyblade; RTI, International
    What We Know About Cancer Stigma in India
  2. Ms. Benda Kithaka; KILELE Health (Kenya)
    Cancer STIGMA in Kenya: Lessons, Gaps & Opportunities from KILELE Health
  3. Dr. Andrew Wood; University of Cincinnati
    Prostate Cancer and Stigma: Perspectives of Self, Social and Couples-Based Stigma
  4. Dr. Dylan Graetz; St. Jude’s
    The Impact of Stigma on Cancer Care Decision-Making for Pediatric Patients with Osteosarcoma and Retinoblastoma in Guatemala, Jordan, and Zimbabwe

Plenary Talk: Dr. Anne Stangl, Division of Global HIV & TB, CDC
The Health Stigma and Discrimination Framework: An Overview


Lunch break


Session 2: Conceptualizing, Measuring, and Addressing Lung Cancer Stigma
Moderator: Dr. Wen-Ying (Sylvia) Chou; NCI

  1. Dr. Jamie S. Ostroff; MSKCC
    What is Lung Cancer Stigma? Why We Should Care About It? What We Can Do About It?
  2. Dr. Smita Banerjee; MSKCC
    Empathic Communication Skills Training: A Provider-Focused Brief Intervention to Reduce Lung Cancer Stigma
  3. Dr. Narjust Florez (Duma); Dana Farber Cancer Institute
    Please Don’t Tell My Family
  4. Mr. James (Jim) Pantelas; Lung Cancer Survivor/Advocate
    Personal Reflections and Comments

Session 3: Intersectional Stigma
Moderator: Dr. Chipper Dean; NCI

  1. Dr. Esther Freeman; Harvard Medical School & Dr. Sigrid Collier; Univ. of Washington
    Intersectional Stigma in HIV-Associated Kaposi's Sarcoma in Western Kenya: Employing a Convergent Mixed-Methods Approach
  2. Mr. Austin R. Waters; University of North Carolina
    Financial Burden and Mental Health Among LGBTQ+ Adolescent and Young Adult Cancer Survivors
  3. Dr. Jon Andrew Dykens; University of Illinois
    Addressing the Role of Gender in Perspectives of Stigma Relative to Cervical Cancer in Rural Sénégal

Plenary Talk: Carolyn Taylor, Founder, Global Focus on Cancer
The Global Face of Cancer Stigma


Dr. Emily Tonorezos, OCS/NCI
Remarks and wrap-up

Day 2: September 29, 2022 (11:00am-1:30pm)

Welcome for Day 2
Dr. Katie Heley; NCI


Plenary Talk: Dr. Sonali Johnson, Union for International Cancer Control (UICC)
Myths, Misconceptions and Cancer Stigma


Plenary Talk: Dr. Lawrence Yang, NYU
Stigma of Health Conditions in the Global Context: A "What matters most perspective" and Applications to Cancer Stigma


Session 4: Interventions for Cancer Stigma
Moderator: Dr. Robin Vanderpool; NCI

  1. Dr. Chigozie Nkwonta; University of South Carolina
    Community-Based Intervention to Reduce Stigma and Improve Knowledge of HPV and Cervical Cancer in Nigeria
  2. Dr. Tom Fitzpatrick; University of Washington
    A Crowdsourced Intervention to Reduce Viral Hepatitis Stigma Among Men Who Have Sex with Men in China
  3. Dr. Megan Huchko; Duke University
    Elimisha: A Multi-Level Intervention to Address HPV-Related Stigma Among Communities Affected by HIV
  4. Dr. Jamie Studts; Univ. of Colorado Cancer Center - Anschutz Medical Campus
    Addressing Lung Cancer Stigma Across the Socioecological Spectrum: Society, Healthcare Systems, Clinicians, Survivors, and Caregivers

Dr. Bill Klein, DCCPS/NCI
Remarks and wrap-up